Global health research in an unequal world : ethics case studies from Africa /
This book is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident.
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| Main Authors: | , , |
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| Format: | Electronic eBook |
| Language: | English |
| Published: |
Wallingford, Oxfordshire ; Boston, MA :
CABI,
[2016]
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| Subjects: | |
| Online Access: | CONNECT |
MARC
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| 100 | 1 | |a Aellah, Gemma, |e author. | |
| 245 | 1 | 0 | |a Global health research in an unequal world : |b ethics case studies from Africa / |c Gemma Aellah, Tracey Chantler, P. Wenzel Geissler. |
| 264 | 1 | |a Wallingford, Oxfordshire ; |a Boston, MA : |b CABI, |c [2016] | |
| 300 | |a 1 online resource (269 pages) : |b illustrations | ||
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| 588 | 0 | |a Print version record. | |
| 504 | |a Includes bibliographical references and index. | ||
| 500 | |a Is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident. | ||
| 520 | 3 | |a This book is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident. | |
| 520 | 3 | |a It is a training tool to fill the gap between research ethics guidelines and their implementation on the ground. | |
| 520 | 3 | |a The case studies focus on 'relational' ethics: ethical actions and ideas that emerge through relations with others, rather than in regulations. | |
| 520 | 3 | |a The book is a flexible resource for training across a variety of contexts, such as medical research organizations, universities, collaborative sites, and NGOs, and for everyone interested in the realities of global health research today. | |
| 520 | 3 | |a The book is divided into two main parts: training case studies for global health researchers, and academic background. | |
| 520 | 3 | |a The 42 total training case studies presented in part I are further divided into four sections focusing on the different types of relationships that characterize the practice of global health research: researcher-participant relationships (15 chapters), community and family relationships (12 chapters), institutional relationships (10 chapters), and staff relationships (5 chapters). | |
| 520 | 3 | |a Each chapter in this first part of the book is composed of an introduction and guidelines page for training facilitators, and a handout for individual or group use (which includes the case study, questions to prompt discussion, and selected further readings). | |
| 520 | 3 | |a The collection of case studies is followed by guidance on how to use the training case studies. | |
| 520 | 3 | |a Part II of the book provides a more in-depth discussion of the key perspectives informing the research approach, an analysis of the context of transnational medical research in Africa, and an outline of what anthropology and the social sciences can offer. | |
| 505 | 0 | |a Cover Page -- Title Page -- Copyright Page -- Forewords -- Preface -- Acknowledgements -- Contents -- Finding your way around the book -- INTRODUCTION -- PART ONE: TRAINING CASE STUDIES -- Researcher-participant relationships -- 1. Fieldwork and friendship: working in your own community -- 2. Soap and persuasion: recruiting and caring for participants -- 3. Gel and/or condoms: safety in a microbicide trial -- 4. Friends like how?: getting personally involved with participants -- 5. Readability and sweet talk: the translation and comprehension of study documents -- 6. We don't pay: 'bus fares' and other gifts in research -- 7. Your friend has nice clothes: confidentiality and staff identity in HIV home follow-up -- 8. Truth and lies: doing fieldwork in your own community -- 9. I could be a sex worker: meanings of exclusion and inclusion criteria to participants -- 10. They just come and ask questions: participants' understanding of the purpose of research -- 11. Responsibility for what and whom?: end-of-trial and long-term healthcare -- 12. Hunger is not our mandate: dealing with poverty among research participants -- 13. They just want to sign quickly: different interpretations of informed consent -- 14. Martha's dilemma: foreign medical research as public good or exploitation? -- 15. Routine healthcare: whose obligation? -- Community and family relationships -- 16. Everybody's corrupt: understanding suspicion in medical research -- 17. Bad press: the origins and impact of 'blood stealing' rumours -- 18. People will always talk: protecting participants from stigma in an HIV study -- 19. Lost in translation: public communication and power relations -- 20. Husband out of town: gender relations and decision-making -- 21. Chop your money!: challenges in recruitment and enforcing study rules. | |
| 505 | 8 | |a 22. My husband doesn't know: involving male partners in microbicide research -- 23. Of course we speak English: community engagement and disseminating information -- 24. Satanists or scientists?: dealing with negative associations 128 -- 25. The Sheep Study: old memories of food, blood and death -- 26. Will they leave us where we are?: expectations of medical research interventions -- 27. Seeing is believing: trial regulations vs. community engagement in an Ebola vaccine trial -- Institutional relationships -- 28. Too many people have turned up!: addressing stakeholders' concerns -- 29. Data troubles: collaboration and the future of partnership -- 30. Between envy, suspicion and desire: embedding research in government healthcare facilities -- 31. The end of a trial: post-trial responsibilities and relationships -- 32. Helping hand: working with public hospitals -- 33. Whose capacity?: collaboration through capacity building -- 34. Like a market: competitive recruitment and double enrolment -- 35. Under one roof: sharing resources in a district hospital -- 36. We will not do your work for free: incentives, per diems and professional culture -- 37. Is it a gift, really?: drug donations, access and social benefit -- Staff relationships -- 38. Per diem: practical inequalities in scientific collaboration -- 39. Do anthropologists know best?: relationships between social scientists and medical researchers -- 40. Who are you?: employment issues and North-South relationships -- 41. Snot for sale: staff's handling of transport reimbursement and rumours -- 42. I'm sure you'll give her a chance: employment and corruption -- How to use the case studies -- Guidance for facilitators -- Facilitator's preparation template -- First experiences of piloting this tool in Africa and Europe -- Resources -- PART TWO: ACADEMIC BACKGROUND. | |
| 505 | 8 | |a Academic background: ethical deliberation, engaged conscience, and conscious choice -- The context of global health inequality -- Inequality and discomfort -- Emergent debates -- We need to talk more -- we need to do more -- REFERENCES -- INDEX OF CASE STUDIES -- Case studies by learning objective -- Case studies by keyword -- ABOUT THE CONTRIBUTORS -- Footnote -- Academic Background. | |
| 590 | 0 | |a KU Open Research Library | |
| 650 | 0 | |a World health |x Research |x Moral and ethical aspects. | |
| 650 | 0 | |a World health. | |
| 651 | 0 | |a Africa. | |
| 655 | 7 | |a Case studies. |2 fast |0 (OCoLC)fst01423765 | |
| 700 | 1 | |a Chantler, Tracey, |e author. | |
| 700 | 1 | |a Geissler, Wenzel, |e author. | |
| 710 | 2 | |a C.A.B. International, |e publisher. | |
| 730 | 0 | |a WORLDSHARE SUB RECORDS | |
| 776 | 0 | 8 | |i Print version: |a Aellah, Gemma. |t Global health research in an unequal world. |d Wallingford, Oxfordshire ; Boston, MA : CABI, [2016] |z 9781786390042 |w (DLC) 2016019492 |w (OCoLC)948243086 |
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